Better Palliative Care Essential as Canada Considers Medically Assisted Death for Youth, Pediatricians Say
(CBC) – The Canadian Paediatric Society is urging improved palliative care for children and youth as a key part of preparing for the possibility of legalizing medical assistance in dying for certain patients under age 18. “Medical assistance in dying is something that has been legislated [for adults] and stated [as] needing to be accessible … but there isn’t the same ‘oomph’ for saying that all Canadians need good access to palliative care,” said Dr. Dawn Davies, chair of the society’s bioethics committee and a pediatric palliative care physician in Edmonton, in an interview with CBC News.
(CNN) – Two issues are the cause of a plethora of diseases and health conditions affecting people worldwide: smoking and obesity. And one local health committee in the UK has announced a controversial policy “to support patients whose health is at risk from smoking or being very overweight.” For an indefinite amount of time, it plans to ban access to routine, or non-urgent, surgery under the National Health Service until patients “improve their health,” the policy states, claiming that “exceptional clinical circumstances (will) be taken into account on a case-by-case basis.”
(Reuters) – The medical charity Medecins Sans Frontieres (Doctors Without Borders) is closing most of its 37 cholera treatment centers in Yemen, saying the epidemic appears to have peaked. Some 884,368 suspected cholera cases have been recorded in the war-torn country in the past six months, including 2,184 deaths, according to the latest figures from the World Health Organization (WHO). The case fatality rate is now 0.25 percent.
(BBC) – British athletes were threatened with not being selected if they spoke out about classification concerns in Paralympic sports, MPs have been told. “It’s somewhere between bullying and control,” said 11-time Paralympic champion Baroness Tanni Grey-Thompson. She was speaking at a Parliamentary committee hearing into claims athletes were cheating the system. It was announced last week that classification rules would be revised, with effect from 1 January.
(Reuters) – Forty-six U.S. state attorneys general will seek to expand a lawsuit alleging price fixing of generic drugs to 18 companies and 15 medicines on Tuesday, including Novartis AG’s generic unit Sandoz and India-based Sun Pharmaceutical Industries Ltd, people familiar with the matter said. The original complaint, being litigated in federal court in Pennsylvania, describes an industry-wide conspiracy in which companies divide up the market as a way to push up prices.
(U.S. News & World Report) – A leading group of U.S. pediatricians is encouraging parents to donate to public cord blood banks after the birth of their children. The past decade has seen an increase in the use of umbilical cord blood for stem cell transplants that can save children with fatal or debilitating diseases, the American Academy of Pediatrics says in a new policy statement.
(Medical Xpress) – Female medical interns are more likely to suffer from symptoms of depression than their male counterparts, and the conflict between work and family responsibilities is a factor in that gender difference about a third of the time. That’s a key finding of a study published October 30 in JAMA Internal Medicine. It was led by Connie Guille, an associate professor in the Department of Psychiatry and Behavioral Science at the Medical University of South Carolina, and Srijan Sen, an associate professor at the University of Michigan. The internship year takes place after medical school, putting physicians-in-training through an important but intense time marked by long work hours. Both women and men experience more depression during this year.
(The Verge) – If this sounds like a PR stunt to you, well, you’re right: the Saudi kingdom was using this eye-grabbing headline to promote a tech summit, part of its nationwide policy to transform an oil-based economy into something more forward-thinking. But it’s not just headline fluff. Some experts say this sort of approach to robot rights is actively damaging, both to public understanding of technology and to civil society itself.
(The Conversation) – Palliative care teams are commonly involved with illnesses such as heart, lung or kidney disease, cancer or advanced dementia. Involving palliative care allows for better control of symptoms and an improved sense of quality of life. It also helps the family of the person who is ill. With better symptom control and support, this frequently translates to less time spent in hospital. A number of studies have even shown early involvement of palliative care can lead to improved survival.
(The Guardian) – Earlier this year I went to an event in Austin, Texas, billed as a sneak preview of the evolution of our species. The #Bdyhax Conference, which took place in a downtown exhibition complex, promised a front-row insight into the coming “singularity” – that nirvana foretold by science fiction in which biology and technology would fuse and revolutionise human capability and experience. The headline acts of the conference were mostly bodyhackers – DIY experimenters who, in their basements and garages, seek to enhance their own flesh and blood with biometric implants and cognitive enablers.
(Washington Post) – The kingdom of Saudi Arabia officially granted citizenship to the humanoid robot last week during a program at the Future Investment Initiative, a summit that links deep-pocketed Saudis with inventors hoping to shape the future. Sophia’s recognition made international headlines — and sparked an outcry against a country with a shoddy human rights record that has been accused of making women second-class citizens.
(Chemistry World) – The therapeutic potential of the Crispr/Cas genome editing tool continues to grow, as US scientists have developed a version of the system that targets RNA and chemically alters its nucleotides. As RNA is ultimately translated to make proteins, being able to edit it could be advantageous for research and gene therapy applications, says Feng Zhang who led the team behind the research at the Broad Institute and Massachusetts Institute of Technology in the US.
Bonds of Life–the Organ Transplant Law 20 yrs on/ Traveling Overseas in Dire Quest for Donor Can Lead to Pitfalls Back Home
(The Yomiuri Shimbun) – The Organ Transplant Law prohibits organ trafficking, and people who travel overseas for transplants are viewed with a harsh eye around the world. All countries face an insufficient number of donors compared to the number of people who need transplants. Criticism is intensifying against transplant tourism, in which people from developed countries travel to mainly developing countries to pay for organ transplants. The Transplantation Society in 2008 adopted the Declaration of Istanbul, which calls for each country to save its own patients. In 2010, the World Health Organization issued new guidelines including similar policies to the declaration.
(Quartz) – Imagine you’re lying in a hospital bed during the last moment of your life and your friends and family can’t be with you. Would a robot do? Not a fancy, Ferrari style one, but a simple machine that touches you repetitively and comforts you with a robotic voice, saying things like “You’re not alone.”
(Medscape) – Genetic technologies are rapidly reshaping medical practice. In 2016, more than 48,000 genetic tests were ordered, many with the primary goal of confirming a clinical diagnosis and guiding medical decision-making. The explosion of genomic diagnostics is allowing more patients to recognize when their own medical conditions are hereditary and, of importance, to understand the risk for their offspring to be similarly affected. Yet one of the most powerful tools of genetic disease prevention—preimplantation genetic diagnosis (PGD)—is frequently overlooked by clinicians.
(First Things) – When first invented, in vitro fertilization (IVF) was sold as a medical remedy to be limited to married couples who could not otherwise conceive. That moralistic restriction is long gone. Today, access to IVF has few limitations—and includes even women well beyond their natural childbearing years. Moreover, it is often combined with “preimplantation genetic diagnosis,” in which a cell is removed from IVF embryos and tested for medical or eugenic failings—as well as for the sex—so that only embryos with desired attributes will be implanted.
Metaphilosophy (vol. 48, no. 4, 2017) is available online by subscription only.
- “Ethical Pragmatism” by Raff Donelson
- “The Philosophical Use and Misuse of Science” by Justine Kingsbury and Tim Dare
- “On the Structure of Bioethics as a Pragmatic Discipline” by David Alvargonzález
- “Three Pervasive Presuppositions about Human Life and Ethics Strongly Warrant Analysis” by Lantz Fleming Miller
JAMA (vol. 318, no. 4, 2017) is available online by subscription only.
- “Monitoring Medical Devices: Missed Warning Signs Within Existing Data” by Andrew M. Ibrahim and Justin B. Dimick
Journal of Medical Ethics (vol. 43, no. 8, 2017) is available online by subscription only.
- “Euthanasia Embedded in Palliative Care. Responses to Essentialistic Criticisms of the Belgian Model of Integral End-of-Life Care” by Jan L Bernheim and Kasper Raus
- “The Moral Agency of Institutions: Effectively Using Expert Nurses to Support Patient Autonomy” by Sonya Charles
- “Income-Based Equity Weights in Healthcare Planning and Policy” by Anders Herlitz
- “Breastfeeding and Defeasible Duties to Benefit” by Fiona Woollard and Lindsey Porter
- “To Stop or Not to Stop: Dissent and Undue Burden as Reasons to Stop Participation in Paediatric Research” by Wendy Bos, Anna Westra, Inez de Beaufort, and Suzanne van de Vathorst
- “Patients’ Views of Consent in Clinical Trials for Acute Myocardial Infarction: Impact of Trial Design” by Neal W Dickert, Kristopher A Hendershot, Candace D Speight, and Alexandra E Fehr
- “Are Positive Experiences of Children in Non-Therapeutic Research Justifiable Research Benefits?” by Mira S Staphorst, Joke A M Hunfeld, and Suzanne van de Vathorst
- “Parents Perspectives on Whole Genome Sequencing for Their Children: Qualified Enthusiasm?” by J A Anderson et al.
- “Whole Genome Sequencing in Children: Ethics, Choice and Deliberation” by Ainsley J Newson
- “Trajectories to Seeking Demedicalised Assistance in Suicide: A Qualitative In-Depth Interview Study” by Martijn Hagens, Bregje D Onwuteaka-Philipsen, and H Roeline W Pasman
- “Epistemic Injustice in Healthcare Encounters: Evidence from Chronic Fatigue Syndrome” by Charlotte Blease, Havi Carel, and Keith Geraghty